Crohn's Disease Forum

This is a forum which brings together victims of the Crohn's disease the world over. It also includes people suffering from ulcerative diseases, gastrointestinal and bowel related diseases and conditions as well as other forms of Inflammatory Bowel Disease. This forum offers members the chance to meet other people who suffer from similar diseases and share their conditions and at the same time get informational tips and support to help them cope with these conditions. People of all genders and age are welcome to these forums no matter what their condition is. And you will get all the confidentiality that you want because this forum provides anonymous posting which goes a long way to ensure that everybody gets the support and help they may need.

Most if not all of the forums require registration which is normally free. Members are advised to get acquainted with the rules and regulations before joining.

New members are encouraged to reveal their stories and introduce themselves to all the members. They are further encouraged to feel free and pour their hearts out, for it is always said that the first step of solving a problem is sharing it out. By doing this, the victims of these diseases are able to know that thousands of people also suffer from these diseases and not just them alone. They also learn how their fellows coped and can also learn a few tips from them.

This forum has a wealth of resources at its disposal to help the people with Crohn's. This is because, due to a growing number in the membership of those with this condition, people have been contributing materials and resources to help their fellow friends and families alike. In one site alone, I found that there were 414 topics and 871 responses and comments. This means there is a good chance you will find the best answer to your question.

The forum also extends an olive branch to people who may know people suffering from these conditions and inform them of the presence of such forums where they can meet and exchange views with people who suffer from similar conditions.

You are also, as a victim, able to see what other people have said, what questions they asked and the comments they make without necessarily registering. This just means you can gain a lot of information by merely visiting the site. The goodness of it all is that the info that you will get is not from some professor who claims to know much about these conditions but from the victims themselves.

Discuss It!

Sherry Kurtz said:

Hi Hi My son was recently diagnosed with Crohns. He's 17 and has been through a lot up to this point before the diagnosis. I have done a lot of reading trying to learn about the disease but I haven't run across much that speaks to the emotional side of dealing with getting this kind of news. Could you all please give me some tips and/or resources to help me to help him? Thank you so much. Sherry

Brian said:

Sherry, Here is my story. Perhaps it will help your son. My story is a very long one. Too long to post in this forum. I have been dealing with Crohn’s Disease for over 30 years. The pain and discomfort caused by this hideous disease destroyed my life. I have gone through two bowel resections and numerous emergency room and hospital visits over the years. During the first twenty years of this disease, Prednisone and Sulfasalazine were the main treatment. Later Antibiotics (Ciprofloxacin or Metronidazole), Corticosteroids, 6-Mercaptopurine (6-MP), Methotrexate, and Cyclosporine when I ended up in emergency rooms. Which happened more than I can remember. None of these worked as the Prednisone did. I eventually started receiving Remicade treatments that helped with the fistulas for a while. This was temporary and I had to go back every 6 weeks. In 2007, the disease flared-up and consumed me. I was found in bed un-responsive and rush to the hospital in an ambulance. I spent three days on life support and stayed in the hospital for approximately 35 days. During this time, they were not able to get control of the disease and I experienced my second bowel resection. I never recovered. After the surgery, I got worse. The pain returned, the fistulas’ got worse, and I developed a new symptom of rashes all over my skin. The pain stayed at a level 10 and was now 24 hours. I slept in 30 minute increments because my bowel frequency was unparalleled to anything I had experience in all the years of harboring this disease. I literally was preparing for my death. I sent all my possessions to my children and arranged for my body to be taken care of. I at this time lost all hope and wanted nothing more than to die. In May of 2009, my roommate approached me and told me she met someone whose grandchild had Crohn’s disease. He had come across this liquid that he felt could help me. I responded that I did not want help and really, as if I need another miracle in my life as I rolled my proverbial eyes. Through the years, I had tried everything. I made my own food. I ate different diets. I tried everything from Probiotic products to vitamins to miracle cures. At every corner through the years was the ultimate miracle that resulted in yet another disappointment. With her insistence, I went to see this individual and when I walked into his office I felt there was no way I wanted anything to do with this. To my disappointment, there was a voice deep down pushing me forward. I accepted the plastic gallon jug he handed me and carried it home. He instructed me to drink 2 ounces a day 3 times a day. The taste was unbelievably horrid at first. My attitude was that I had nothing to lose. Therefore, I drank this stuff three times a day. On the third day, the pain disappeared and I was able to sleep through most of the night. The frequency went down and I was able to sleep through the night within a week of starting the formula. Today I am not totally symptom free and there are some resemblances of the disease present at times. However, I lost my ileum in the first bowel resection and bile can be an issue if I do not watch my diet. For the most part, I live a productive, happy symptom free life. In my heart, I know the disease is gone. I feel that after 30 plus years of pain and everything else that comes with Crohn’s disease there is a body and cellular memory. As each day goes by, I laugh more than the day before. There is hope for people out there. I encourage you to start reading more on alkalinity and disease. There are several great sites talking about this and it works. The one thing I found common in all diseases is that they thrive in an acid environment. This liquid I drank raised my pH from a 5.0 (which is as bad as it gets) to a 6.25 in three days and the Crohns started dissipating. The following site talks about acidity and alkaline in the body. This is not the person mentioned or the water I drank. It is a website I found while educating myself on this topic. I read many things on this topic after meeting this person because I did not want to go into it blind. I am a Software Engineer by education and have worked for IBM and Dell over the past 25 years. I am one of those people who does research to ad nauseum. I encourage you to look into this. http://www.drcelltox.com/whatinthecell-1.asp Sincerely, Brian

Brian said:

I would love to be able to edit that mess. I would look into a forum with more flexibility. Sherry, You can copy the above and paste it into a Word Doc or Notepad to better understand it. Thanks, Brian

tom z said:

I've read some of the posts here. I wanted to show people how much Humira shots helped me cope with Crohn's disease symptoms. I've been in remission symptom free for years now. If you want to check out my blog, here is how I did it... its at: http://crohnsdiseasediagnosis.blogspot.com/